This update is a little overdue. The days have been busy here. I had an unusually smooth time in hospital for my SDR surgery. While most adults speak often of nausea, vomiting, dizziness and headaches from spinal fluid loss during surgery -- I was blessed to not encounter any of that.That's not to say my stay was easy -- (the muscle spasms in my back continue to be no joke!) but it was far better than I had anticipated. Oh how the tables turned once I was discharged on Wednes

Current Mood at 4:52am? Let's DO This! #SDRChangesLives 💚💪

Good news from St. Louis! Yesterday was a dream realized. I met with Dr. Park at long last. He is as wonderful in person as everyone has said. The time, care, compassion and expertise he shared with me surpassed every expectation I could've imagined. In short, I found answers to questions I've had about CP for 37 years. He believes without reservation that SDR surgery is an "excellent option...the ONLY option left, and that without SDR I would lose my ability to walk in the i

Hi Everyone, Today I have a special update to share. The last 3 months have been full to the brim! Full of work and everyday demands. Full of physical therapy appointments. Full of ups and downs as I struggled more than ever to maintain my mobility in this particularly tough winter (even by Canadian standards!). And...it's also been full of time spent managing existing and new pain in my feet, while spasticity has continued to take its frustrating toll. Of course, I've also b